沙特阿拉伯王国政府所属的官方政府网站。

周日 16 八月 2026

沙特官方政府网站的域名以下列后缀结尾 gov.sa

沙特阿拉伯王国所有政府机构的官方网站均以 .gov.sa 结尾。

Official Reliable websites use HTTPS

Ensure the website is using the HTTPS protocol.

在数字政府管理局注册,编号:

20250831619

建议

An observational disease and clinical outcomes registry of patients with acid lipase (LAL) deficiency

An observational disease and clinical outcomes registry of patients with acid lipase (LAL) deficiency

2023-02-07

عنوان الدراسة

An observational disease and clinical outcomes registry of patients with acid lipase (LAL) deficiency

دواء الدراسة

Kanuma

رقم بروتوكول الدراسة

ALX-LALD-5

حالة الدراسة

Ongoing

موقع الدراسة

King Faisal Specialist Hospital and Research Center (Riyadh) , King Abdulaziz Medical City NG (Riyadh)

مرحلة الدراسة

4